Crawfish & Music Festival Will Raise Funds for Thisbe and Noah Scott Foundation and Rotary Club
Oxford, Miss. — The Oxford-Ole Miss Rotary Club annouces its first Tunes & Tails fundraiser, set for May 17, 2012, from 5-9 pm at The Powerhouse in Oxford. For a mere $10, Oxonians get all-you-can eat crawfish and live music by Jimbo Mathus & the Tri-State Coalition and Moon Pie Curtis. It would be a great bargain under any circumstance, but part of the proceeds go to the Thisbe and Noah Scott Foundation and to the Rotary club.
The Thisbe and Noah Scott Foundation was established by John and Laurian Scott, residents of Oxford, who lost their children Thisbe and Noah, who died before ages three and two respectively, to a pediatric neuromuscular disease. For more information about the disease, and to read the Scotts’ full story, go to www.thisbeandnoah.org.
The mission of the Thisbe and Noah Scott Foundation is to promote research, awareness, and support for families with pediatric neuromuscular diseases in general and motor neuron diseases like BVVL (Brown-Vialetto-Van Laere) in specific. PBP and BVVL syndromes are categories of Pediatric Motor Neuron Diseases (MND). This group of diseases causes motor neuron degeneration (death of motor nerve cells), which causes them to stop sending signals to the muscles, and the muscles atrophy. PBP and BVVL specifically target motor neurons within the cranial nerves and the muscles that are responsible for the basic functions of life.
This article was published in The Local Voice #155 (May 3-19, 2012).
